Associate Director, Patient Advocacy, Skeletal Dysplasia

Mavericks Wanted   When was the last time you achieved the impossible? If that thought feels overwhelming, you might want to pause here, but if it sparks excitement...read on       In 2015, we pioneered a “moneyball for biotech” approach, pooling projects and promising early-stage research from academia together under one financial umbrella to reduce risk and unleash innovation. This model allows science and small teams of experts to lead the way. We build bridges to groundbreaking advancements in rare disease, and develop life-changing medicines for patients with unmet needs as fast as humanly possible.        Together we define white space, push boundaries, and empower people to solve problems. If you're someone who defies convention, join us and work alongside some of the most respected minds in the industry. Together, we'll ask "why not?" and help reengineer the future of biopharma. At BridgeBio, we value curiosity and experimentation—including the ethical & thoughtful use of AI to improve clarity, speed, and quality of work.   What You’ll Do The Associate Director, Patient Advocacy, Skeletal Dysplasia will develop and execute patient advocacy activities that support BridgeBio’s work in skeletal dysplasia, primarily focusing on Europe, Latin America and other international markets as needed, and requires fluency in both Portuguese and Spanish. The role has responsibility for the development and execution of the skeletal dysplasia patient advocacy activities in support of clinical development and commercialisation, while safeguarding long-term patient trust and community relationships in support to the Global and International Patient Advocacy strategy Reporting to the Executive Director of International Patient Advocacy, this role drives engagement across the skeletal dysplasia community in Latin America, Europe and supports other relevant international and local markets as needed, ensuring community insights inform company strategy and decision-making. The Associate Director supports the development of external international partnerships and advocacy and educational initiatives, strengthening meaningful outreach across the region. Key Responsibilities Serve as the primary liaison to patient advocacy organizations in Latin America, Europe and other international markets as needed, establishing and strengthening compliant, long-term relationships built on trust, transparency, and alignment Support the development of the patient advocacy strategy and implement an international patient advocacy plan for skeletal dysplasia, aligned with the international plan and local priorities Represent BridgeBio at patient advocacy and community meetings across Europe, Latin America and other international markets as needed, building and strengthening relationships with patient organizations and local communities Bring patient and caregiver perspectives into clinical development, medical affairs, regulatory, market access, and commercial planning, as appropriate to the stage of each program Plan and deliver appropriate engagement activities, such as advisory boards, patient organization meetings, educational initiatives, community surveys, patient videos and opportunities to provide input on patient-facing materials Adapt engagement and communications for Spanish- and Portuguese-speaking and other international communities, ensuring materials and interactions are culturally relevant and accessible Support the Executive Director of International Patient Advocacy in strategic planning and oversight of advocacy-related budgets, including grants, sponsorships, advisory engagements, and educational initiatives Work with local and international teams to understand differences in care pathways, access barriers, community priorities, and advocacy environments across international markets Coordinate international grants, sponsorships, advisory engagements, and program budgets in li